evna.care
Google Keyword Rankings for : world pompe
1
https://www.worldpompe.org/
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https://www.worldpompe.org/
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2
https://www.facebook.com/International-Pompe-Association-IPA-119237914814204/
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https://www.facebook.com/International-Pompe-Association-IPA-119237914814204/
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3
https://www.sanofi.com/en/media-room/press-releases/2022/2022-02-08-14-00-00-2380936
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https://www.sanofi.com/en/media-room/press-releases/2022/2022-02-08-14-00-00-2380936
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4
https://worldsymposia.org/
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https://worldsymposia.org/
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5
https://pompe.uk/pompe-news
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https://pompe.uk/pompe-news
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6
https://www.ninds.nih.gov/health-information/disorders/pompe-disease
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https://www.ninds.nih.gov/health-information/disorders/pompe-disease
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7
https://pompediseasenews.com/news/upcoming-international-pompe-day-aims-to-raise-awareness/
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https://pompediseasenews.com/news/upcoming-international-pompe-day-aims-to-raise-awareness/
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8
https://www.internationaldays.co/item-detail/international-pompe-day-2022/r/recoOKbnhtFjITfLh
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https://www.internationaldays.co/item-detail/international-pompe-day-2022/r/recoOKbnhtFjITfLh
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9
https://ir.amicusrx.com/news-releases/news-release-details/amicus-therapeutics-announces-positive-18-month-data-pompe
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https://ir.amicusrx.com/news-releases/news-release-details/amicus-therapeutics-announces-positive-18-month-data-pompe
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10
https://mazetx.com/maze-therapeutics-to-present-preclinical-data-highlighting-mze001-as-a-potential-treatment-for-pompe-disease-at-2022-world-symposium/
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https://mazetx.com/maze-therapeutics-to-present-preclinical-data-highlighting-mze001-as-a-potential-treatment-for-pompe-disease-at-2022-world-symposium/
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11
https://www.clinicaltherapeutics.com/article/S0149-2918(11)00315-8/pdf
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https://www.clinicaltherapeutics.com/article/S0149-2918(11)00315-8/pdf
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12
https://corporate.dukehealth.org/news/duke-experts-participate-first-use-fetal-therapy-pompe-disease
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https://corporate.dukehealth.org/news/duke-experts-participate-first-use-fetal-therapy-pompe-disease
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13
https://www.grundfos.com/us
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https://www.grundfos.com/us
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14
https://atm.amegroups.com/article/view/27142/html
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https://atm.amegroups.com/article/view/27142/html
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15
https://treat-nmd.org/organization/international-pompe-association/
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https://treat-nmd.org/organization/international-pompe-association/
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16
https://ojrd.biomedcentral.com/track/pdf/10.1186/s13023-019-1054-0.pdf
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https://ojrd.biomedcentral.com/track/pdf/10.1186/s13023-019-1054-0.pdf
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17
https://www.ucalgary.ca/participate/study/14880/pompe-registry-global-data-collection-and-sharing-variability-progression-and-natural
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https://www.ucalgary.ca/participate/study/14880/pompe-registry-global-data-collection-and-sharing-variability-progression-and-natural
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18
https://web.musc.edu/about/news-center/2022/09/22/from-panic-over-results-of-newborn-screening-to-gratitude-for-the-early-diagnosis
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https://web.musc.edu/about/news-center/2022/09/22/from-panic-over-results-of-newborn-screening-to-gratitude-for-the-early-diagnosis
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19
https://www.pompecanada.com/blog/awareness/international-pompe-day-2022/
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https://www.pompecanada.com/blog/awareness/international-pompe-day-2022/
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20
https://sparktx.com/voices/the-power-of-connections-creating-new-paths-in-treating-pompe-disease/
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https://sparktx.com/voices/the-power-of-connections-creating-new-paths-in-treating-pompe-disease/
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21
https://www.tandfonline.com/doi/abs/10.4161/auto.4591
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https://www.tandfonline.com/doi/abs/10.4161/auto.4591
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22
https://www.childrenshospital.org/conditions/pompe-disease
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https://www.childrenshospital.org/conditions/pompe-disease
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23
https://www.rarediseaseadvisor.com/insights/pompe-insights/epidemiological-studies-pompe-disease/
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https://www.rarediseaseadvisor.com/insights/pompe-insights/epidemiological-studies-pompe-disease/
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24
https://oneworldbrewing.com/event/pimps-of-pompe-2022-08-26/
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https://oneworldbrewing.com/event/pimps-of-pompe-2022-08-26/
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25
https://en.wikipedia.org/wiki/Annelie_Pompe
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https://en.wikipedia.org/wiki/Annelie_Pompe
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26
https://www.lumizyme.com/patients/resources/the_pompe_registry
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https://www.lumizyme.com/patients/resources/the_pompe_registry
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27
https://medschool.duke.edu/stories/duke-continues-take-extraordinary-measures-treat-pompe-disease
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https://medschool.duke.edu/stories/duke-continues-take-extraordinary-measures-treat-pompe-disease
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28
https://www.sanofistudies.com/cwout/CW-V9DEXS/us/en/condition/25022/pompe-disease/
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https://www.sanofistudies.com/cwout/CW-V9DEXS/us/en/condition/25022/pompe-disease/
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29
https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(21)00351-5/fulltext
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https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(21)00351-5/fulltext
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30
https://everylifefoundation.org/newborn-screening-take-action/pompe-disease/
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https://everylifefoundation.org/newborn-screening-take-action/pompe-disease/
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31
https://www.volv.global/
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https://www.volv.global/
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32
https://bmjpaedsopen.bmj.com/content/2/1/e000182
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https://bmjpaedsopen.bmj.com/content/2/1/e000182
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33
https://carnegiesciencecenter.org/exhibits/
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34
https://www.astellasgenetherapies.com/
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https://www.astellasgenetherapies.com/
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35
https://www.hcplive.com/view/fda-defers-action-novel-pompe-disease-therapy-cipaglucosidase-alfa-at-gaa-decision
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https://www.hcplive.com/view/fda-defers-action-novel-pompe-disease-therapy-cipaglucosidase-alfa-at-gaa-decision
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36
https://med.emory.edu/departments/human-genetics/_documents/_documents-clinical-trials/Pompe%20dx.pdf
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https://med.emory.edu/departments/human-genetics/_documents/_documents-clinical-trials/Pompe%20dx.pdf
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37
https://www.mdpi.com/journal/IJNS/special_issues/pompe
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https://www.mdpi.com/journal/IJNS/special_issues/pompe
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38
https://www.youtube.com/watch?v=nyJqhI5AI-g
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https://www.youtube.com/watch?v=nyJqhI5AI-g
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39
https://worldathletics.org/athletes/united-states/jack-pompe-14834244
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https://worldathletics.org/athletes/united-states/jack-pompe-14834244
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40
https://www.ebay.com/itm/224659457957
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https://www.ebay.com/itm/224659457957
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41
http://www.peronipompe.com/eng/contacts/peroni-pompe-worldwide.aspx
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http://www.peronipompe.com/eng/contacts/peroni-pompe-worldwide.aspx
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42
https://clinicaltrials.gov/ct2/show/NCT05073783
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https://clinicaltrials.gov/ct2/show/NCT05073783
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43
https://www.futuremedicine.com/doi/full/10.2217/frd-2022-0009
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https://www.futuremedicine.com/doi/full/10.2217/frd-2022-0009
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44
https://www.flowserve.com/en/
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https://www.flowserve.com/en/
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45
https://www.databridgemarketresearch.com/reports/global-pompe-disease-market
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https://www.databridgemarketresearch.com/reports/global-pompe-disease-market
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46
https://www.sciencedirect.com/science/article/pii/S0929693X2200121X
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https://www.sciencedirect.com/science/article/pii/S0929693X2200121X
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47
https://www.technavio.com/report/global-central-nervous-system-global-pompe-disease-treatment-market-2016-2020
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https://www.technavio.com/report/global-central-nervous-system-global-pompe-disease-treatment-market-2016-2020
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48
https://www.imfconnect.org/content/imf/en/annual-meetings/calendar/open/2022/10/10/168371.html
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https://www.imfconnect.org/content/imf/en/annual-meetings/calendar/open/2022/10/10/168371.html
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49
https://www.deeperblue.com/new-world-record-in-variable-weight-for-annelie-pompe/
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https://www.deeperblue.com/new-world-record-in-variable-weight-for-annelie-pompe/
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50
https://globalgenes.org/disease/pompe-disease/groups/
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https://globalgenes.org/disease/pompe-disease/groups/
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51
https://agsd.org.uk/news/international-pompe-day/
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https://agsd.org.uk/news/international-pompe-day/
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52
https://link.springer.com/article/10.1186/s13023-019-1054-0;
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https://link.springer.com/article/10.1186/s13023-019-1054-0;
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53
https://www.gimjournal.org/article/S1098-3600(21)03223-8/pdf
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https://www.gimjournal.org/article/S1098-3600(21)03223-8/pdf
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54
https://www.neurologylive.com/view/fda-defers-action-on-at-gaa-treatment-for-pompe-disease
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https://www.neurologylive.com/view/fda-defers-action-on-at-gaa-treatment-for-pompe-disease
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55
https://www.worldscientific.com/doi/10.4015/S1016237211002591
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https://www.worldscientific.com/doi/10.4015/S1016237211002591
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56
https://amda-pompe.org/links/
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https://amda-pompe.org/links/
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57
https://www.psmarketresearch.com/market-analysis/pompe-disease-market
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https://www.psmarketresearch.com/market-analysis/pompe-disease-market
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58
https://apnews.com/4c54fad22f2243cf992585ad9e5ec18c
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https://apnews.com/4c54fad22f2243cf992585ad9e5ec18c
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59
https://www.fiercepharma.com/pharma/sanofi-coughs-up-180m-to-settle-pompe-disease-drug-royalty-payment-dispute
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https://www.fiercepharma.com/pharma/sanofi-coughs-up-180m-to-settle-pompe-disease-drug-royalty-payment-dispute
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60
http://australianpompe.org.au/wp-content/uploads/2017/10/pc_07_en_2005_common_health_concerns1.pdf
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http://australianpompe.org.au/wp-content/uploads/2017/10/pc_07_en_2005_common_health_concerns1.pdf
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61
https://www.zamplo.org/pompe-disease
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https://www.zamplo.org/pompe-disease
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62
https://patientworthy.com/2016/12/30/pompe-mother-xmas-list/
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https://patientworthy.com/2016/12/30/pompe-mother-xmas-list/
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63
https://www.cambridge.org/core/journals/canadian-journal-of-neurological-sciences/article/pompe-disease-diagnosis-and-management-evidencebased-guidelines-from-a-canadian-expert-panel/0846BEE7B29905AC601D8D6D09A7A94A
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https://www.cambridge.org/core/journals/canadian-journal-of-neurological-sciences/article/pompe-disease-diagnosis-and-management-evidencebased-guidelines-from-a-canadian-expert-panel/0846BEE7B29905AC601D8D6D09A7A94A
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64
https://www.nature.com/articles/s41746-019-0143-8
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https://www.nature.com/articles/s41746-019-0143-8
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65
https://www.ottawahospital.on.ca/en/healthy-tomorrows/the-ottawa-hospital-administers-world-first-in-utero-treatment-for-rare-genetic-disorder/
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https://www.ottawahospital.on.ca/en/healthy-tomorrows/the-ottawa-hospital-administers-world-first-in-utero-treatment-for-rare-genetic-disorder/
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66
https://www.astellas.com/en/news/25956
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https://www.astellas.com/en/news/25956
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67
https://documents.worldbank.org/en/publication/documents-reports/documentdetail/134561468101340623/afrique-du-sud-la-pompemanege-de-roundabout-outdoor
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https://documents.worldbank.org/en/publication/documents-reports/documentdetail/134561468101340623/afrique-du-sud-la-pompemanege-de-roundabout-outdoor
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68
https://www.worldpumps.com/content/news/industrial-flow-solutions-to-acquire-italy-s-dreno-pompe/
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https://www.worldpumps.com/content/news/industrial-flow-solutions-to-acquire-italy-s-dreno-pompe/
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69
https://www.reuters.com/article/genzyme-movie/genzyme-role-in-pompe-disease-struggle-hits-theaters-idUSN2014401220100120
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https://www.reuters.com/article/genzyme-movie/genzyme-role-in-pompe-disease-struggle-hits-theaters-idUSN2014401220100120
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70
https://twitter.com/sanofigenzyme/status/1063499754523566082
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https://twitter.com/sanofigenzyme/status/1063499754523566082
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71
https://www.jcrpharm.co.jp/en/site/en/biopharmaceutical/research.html
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https://www.jcrpharm.co.jp/en/site/en/biopharmaceutical/research.html
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72
https://www.cbc.ca/radio/thecurrent/in-utero-pompe-disease-treatment-1.6646669
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https://www.cbc.ca/radio/thecurrent/in-utero-pompe-disease-treatment-1.6646669
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73
https://www.sulzer.com/en
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74
https://www.espn.com/boxing/story/_/id/25319228/aiba-women-world-championships-danish-supermom-yvonne-baek-rasmussen-boxing-pompe-disease-awareness
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75
https://www.rovatti.com/
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76
https://www.finishthompson.com/
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77
https://www.clinicaltrialsarena.com/news/maze-dosing-phase-i-pompe-disease-therapy/
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https://www.clinicaltrialsarena.com/news/maze-dosing-phase-i-pompe-disease-therapy/
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78
https://www.aanem.org/getmedia/f7948141-1d35-4edd-8baf-867c193ad790/Pompe-Position-Statement.pdf
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https://www.aanem.org/getmedia/f7948141-1d35-4edd-8baf-867c193ad790/Pompe-Position-Statement.pdf
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79
https://www.practiceupdate.com/content/world-2018-confirmed-the-pharmacokinetic-effect-of-the-pharmacologic-chaperone-at2221-on-the-recombinant-acid-alpha-glucosidase-atb200-in-pompe-disease/64316
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https://www.practiceupdate.com/content/world-2018-confirmed-the-pharmacokinetic-effect-of-the-pharmacologic-chaperone-at2221-on-the-recombinant-acid-alpha-glucosidase-atb200-in-pompe-disease/64316
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80
https://www.ctvnews.ca/health/rare-deadly-genetic-disease-successfully-treated-in-utero-for-first-time-1.6146283
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https://www.ctvnews.ca/health/rare-deadly-genetic-disease-successfully-treated-in-utero-for-first-time-1.6146283
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81
https://www.hindawi.com/journals/tswj/2014/963861/fig2/
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https://www.hindawi.com/journals/tswj/2014/963861/fig2/
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82
https://pesquisa.bvsalud.org/global-literature-on-novel-coronavirus-2019-ncov/resource/pt/covidwho-1677221
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https://pesquisa.bvsalud.org/global-literature-on-novel-coronavirus-2019-ncov/resource/pt/covidwho-1677221
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83
https://quod.lib.umich.edu/m/middle-english-dictionary/dictionary/MED33970
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https://quod.lib.umich.edu/m/middle-english-dictionary/dictionary/MED33970
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84
https://pompestudy.com/propel/
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https://pompestudy.com/propel/
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85
https://valve-world.net/trillium-to-acquire-termomeccanica-pompe/
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https://valve-world.net/trillium-to-acquire-termomeccanica-pompe/
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86
https://www.psgdover.com/griswold
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https://www.psgdover.com/griswold
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87
https://www.marzocchipompe.com/en/applications
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https://www.marzocchipompe.com/en/applications
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88
https://www.columbusmckinnon.com/en-us/
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https://www.columbusmckinnon.com/en-us/
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89
https://www.yahoo.com/now/trillium-flow-technologies-acquires-termomeccanica-090500345.html
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https://www.yahoo.com/now/trillium-flow-technologies-acquires-termomeccanica-090500345.html
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90
https://www.worldoil.com/company-news/2022/4/12/trillium-flow-technologies-acquires-termomeccanica-pompe/
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https://www.worldoil.com/company-news/2022/4/12/trillium-flow-technologies-acquires-termomeccanica-pompe/
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91
https://www.k-online.com/vis/v1/en/exhibitors/k2022.2699599
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https://www.k-online.com/vis/v1/en/exhibitors/k2022.2699599
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92
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93
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94
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https://www.cnbc.com/video/2021/02/11/john-crowley-amicus-therapeutics-discusses-drug-trial-results-for-pompe-disease.html
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96
https://www.uptodate.com/contents/lysosomal-acid-alpha-glucosidase-deficiency-pompe-disease-glycogen-storage-disease-ii-acid-maltase-deficiency
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97
https://www.spierziekten.nl/fileadmin/user_upload/VSN/documenten/Algemeen/Q4_2020_Update_from_IPA__002_.pdf
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